I’ve successfully ignored the last 4 phone calls from my Dr.’s office, knowing their intention to schedule another visit. My Doctor is an amazing, compassionate person, but I know what they’re going to say.
Excercise, Rest, Eat well, Build relationships…
What I wish I could explain is that I already am.
Excercise – We do. Music therapy, morning and afternoon. Brushing and joint compressions before bed. Mouth excercises to learn to eat. Fine motor, gross motor and on and on.
Rest – I do, until she wakes me up. Again.
Eat well – Definitely. Counting every bite. Separate meals, special snacks. Never enough.
Build relationships – Helen, do you see this picture? That’s sad. Can you show me what sad looks like? Helen, look at him. He’s talking to you. Can I hug you?
So, I let the phone ring one more time. And I go take care of my daughter.
In Pursuit of Helen 